By Asha Bekidusa, Photo Courtesy Willow Health Media 

Unlike conventional medicine that treats symptoms, Ayurveda focuses on root causes of disease and views health as a balance between body, mind and spirit. 

Rosemary Odinga, daughter of the late former Kenyan Prime Minister Raila Odinga, lost her sight after brain tumour surgery and a stroke in 2017. After conventional treatments in multiple countries failed, her family turned to an ancient Indian healing system called Ayurveda. 

So, what is Ayurveda? 

Ayurveda means ‘the science of life’ from the Sanskrit (Ayur = life, Veda = knowledge). It is one of the world’s oldest medical systems, originating in India over 5,000 years ago. 

Unlike conventional medicine that treats symptoms, Ayurveda focuses on the root causes of disease. It views health as a balance between body, mind, and spirit.  

Ayurveda developed alongside ancient Hindu philosophical schools that emphasised observation, logic, and reasoning. It views the human body as part of the natural universe, made from the same elements. 

Ayurveda views health as a state of balance among three biological energies, or The Three Doshas: 

• Vata (air and space) 
• Pitta (fire and water) 
• Kapha (water and earth) 

When these energies are balanced, you’re healthy. When disturbed, disease occurs. 

Ayurvedic Eye Treatment (Netra Chikitsa) 

In Ayurveda, eyes are “windows to the soul” and mirrors of internal health. Vision problems aren’t just eye issues; they reflect imbalances in your entire system. 

Common Ayurvedic Eye Therapies 

1. Netra Tarpana: Eye bath using medicated ghee (clarified butter) to strengthen optic nerves and improve vision clarity 
2. Nasya: Herbal oils administered through the nasal passages to cleanse the head and enhance oxygen flow to the eyes 
3. Netra Sekam: Continuous pouring of herbal solutions over the eyes to reduce inflammation and remove impurities 
4. Snehana and Swedana: Oil massage and steam therapy to improve blood circulation and eliminate toxins 

How It Differs from Conventional Treatment 

Ayurvedic Approach: 

• Treats underlying energy imbalances 
• Uses herbal formulations, ghee therapies, and detoxification 
• Includes diet and lifestyle corrections 
• Aims to restore natural eye function by reviving damaged tissues 

Conventional Approach: 

• Treats specific symptoms or defects 
• Uses surgery, corrective lenses, laser therapy, and pharmaceuticals 
• Focuses on mechanical correction 

Global Recognition and Acceptance 

The World Health Organization (WHO) recognises Ayurveda as a legitimate traditional medical system and encourages countries to integrate it into public healthcare. 

According to the WHO’s 2019 report: 

• 170 countries use some form of traditional medicine 
• About 40% of modern pharmaceuticals trace their roots to traditional herbal knowledge (including aspirin and artemisinin) 

Africa a growing market for Indian medicines 

Ayurvedic medicine has entered Africa through trade and the growing market for Indian-based medicines. South Africa officially recognises it, and it complements Africa’s strong tradition of indigenous herbal medicine. 

In Kenya, Ayurvedic clinics operate in cities like Nairobi. Some insurance providers now partner with Ayurvedic institutions to cover alternative treatments. Kenya’s National Drug Policy (1994) and Development Plan (1989) acknowledge the value of traditional medicine. 

Several global figures have embraced Ayurvedic therapies for their rejuvenation and stress relief, including; 

• Supermodel Naomi Campbell (massage treatments in Kerala, 2013) 
• Pop star Madonna 
• Former UK Prime Minister Tony Blair and wife, Cherie Blair 

The Future of Ayurveda 

As modern science increasingly validates traditional knowledge, Ayurveda sits at the intersection of ancient wisdom and modern innovation. The convergence of traditional systems- Ayurveda, Chinese medicine, naturopathy – may open new doors in: 

• Herbal drug discovery 
• Preventive health 
• Integrative medical education 

Raila Odinga’s choice of Ayurveda for his daughter wasn’t just a desperate attempt; it was a testament to faith in humanity’s oldest healing science. His own subsequent treatment in India demonstrates how this ancient system remains valued today for its use of natural elements. 

As the 21st century embraces wellness, balance, and sustainability, Ayurvedic medicine is poised to help shape the future of healthcare. 

Key takeaway 

Ayurveda offers a holistic approach to health that treats the person as a whole, body, mind, and spirit, rather than just addressing isolated symptoms. While it shouldn’t replace conventional medicine in emergencies, it provides complementary options that have helped patients like Rosemary Odinga when other treatments failed.  

This article was first published by Willow Health Media on October 16, 2025.

Joubert Syndrome: ‘My baby couldn’t lift his head, or sit down’  

Roselyn Kanja Odero’s son was diagnosed with this rare neurological disorder that affects one in 100,000 children worldwide…and is sometimes mistaken for cerebral palsy. 

When Roselyn Kanja Odero first held her newborn son, Morgan, there were no signs that anything was amiss. But as weeks turned to months, Roselyn began noticing the milestones were delayed. Morgan wasn’t holding his head up. He wasn’t sitting. Something wasn’t right.  

“He started holding his head up around the fifth month,” Roselyn recalls. “And then started sitting at three years,” the mother of two narrates.  

What followed was a long and confusing medical journey. Numerous hospital visits, recurrent infections, and no clear answers until a brain MRI changed everything. Morgan was diagnosed with Joubert syndrome, a rare neurological disorder that affects only 1 in 80,000 to 100,000 children worldwide.  

Today, Morgan is eight years old and attends school, where he continues to surprise those around him. While his physical and developmental milestones trail about two years behind his peers, his emotional intelligence and cognitive spark often shine brighter than expected. His progress, though uneven, is a powerful reminder that growth doesn’t always follow the same path. 

Joubert syndrome is a genetic condition caused by mutations in more than 30 known genes. It primarily affects brain development, especially the area responsible for balance and coordination. The telltale sign is a brain scan showing what doctors call the “molar tooth sign.”  

“So, Joubert’s syndrome is a condition that is caused by the fact that part of the brain is not formed,” explains Dr Catherine Mutinda, a paediatrician and geneticist. The reason she says “Is because the genetic imprint or the code that is responsible for that part being formed is either not there or it’s not working.”  

In the specific case of Joubert’s syndrome, the midbrain is not formed as it should be 

In Joubert syndrome, the midbrain, which controls vital motor functions, doesn’t form correctly. This causes a ripple effect across the body.  

“The brain is a big and serious organ that controls everything,” Dr Mutinda adds. “In the specific case of Joubert’s syndrome, the midbrain is not formed as it should be. And therefore, the functions of that part of the brain are all affected. This includes balance, inability to coordinate, and the way they are moving.”  

Roselyn and her husband had never heard of Joubert Syndrome before Morgan’s diagnosis. There was no known history of the condition in their families. Doctors explained that sometimes genetic conditions can occur spontaneously with no warning and no family precedent. This type of random genetic mutation is known as a de novo occurrence.

She is mindful that her older son, Morgan’s brother, could be a carrier of the same genetic mutation. She’s open about this reality and says she’s prepared to have that conversation with him when the time comes, especially as he starts thinking about starting a family of his own. 

Joubert’s Syndrome has no cure, but early interventions like physical and occupational therapy can significantly improve outcomes.  The financial burden of managing Morgan’s condition is immense. At one point, he required a specialised formula that cost around Ksh3,000 per pack, and he would go through one every week. Therapy remains an ongoing need, with sessions priced as high as Ksh3,000 each, and Morgan needing up to three sessions per week. 

Beyond the regular classroom support, Morgan requires a dedicated special-needs teacher 

He also uses a specialised stroller to support his mobility, but these aids are expensive, and Morgan outgrows them quickly. At school, his needs are even more complex: beyond the regular classroom support, he requires a dedicated special-needs teacher, since he is neither fully mobile nor verbally responsive. 

Joubert Syndrome is frequently misdiagnosed as cerebral palsy (CP), especially in babies who are floppy or experience seizures. However, cerebral palsy is a broad umbrella of conditions and should always be questioned. Accurate diagnosis is essential because the treatment and prognosis differ vastly.   

Dr Mutinda cautions against accepting such labels without scrutiny: “Let’s not accept CP as a blanket diagnosis. CP caused by what? That should be our question as parents.”  

Dr Mutinda emphasised the critical role of parents, especially mothers, in advocating for their children’s health. 

“As a mother, you are the primary caregiver, you are the primary doctor, you are the primary clinician. Trust that instinct,” she said, urging families to challenge vague or incomplete diagnoses.  

Her call is clear. Parents must feel empowered to ask tough questions, push for clarity, and seek comprehensive evaluations when something doesn’t add up.  

Morgan’s diagnosis was at a time when genetic counselling was still out of reach  

With few local specialists and limited online information at the time of diagnosis, Roselyn’s search for answers led to a dead end.  

“Google had several pages, I think ours stopped at page two. After that, it was unrelated searches,” she recalls. “You are in totally new territory.”  

Roselyn received Morgan’s diagnosis at a time when genetic counselling was still out of reach for most Kenyan families, deepening the uncertainty that followed the rare diagnosis. Roselyn recalls how a sleep study prompted by Morgan’s sleep apnea, where his body would literally forget to breathe, was one of the many steps on a long, diagnostic journey. 

Because the condition was so rare, she found herself carrying a file of all Morgan’s medical records, moving from one doctor to another. Often, Roselyn would have to explain his symptoms herself, helping the specialists piece together his care. The doctors who were willing to listen and learn alongside her became invaluable, helping her better understand her son’s complex condition. 

Navigating life with a rare disorder meant more than doctor appointments; it was emotional labour and constant explaining.  

“You hear things like, ‘Put him in the sun,’ or ‘You’re not praying enough.’ People’s opinions can sometimes be a burden.”Roselyn explains.  

Even simple errands or hiring a nanny required extra planning and patience. “Support for me,” Roselyn says, “looks like having a good nanny, and a community I can talk to. Because there are so many things to navigate. Roselyn has not been spared the sting of stigma. Something as simple as a trip to the supermarket often draws silent stares, whispers, or even sneers. The sight of Morgan in his specialised stroller seems to invite judgment from strangers who don’t understand his condition. 

The Kenyan government has now established a Rare Disease Working Group  

Over time, Roselyn has grown thick skin, grounding herself in faith and the unwavering belief that her child is a blessing, not a burden. She’s found strength in the support of her church community and from fellow parents within Rare Disorders Kenya, the organisation she co-founded. Her advice to other parents raising children with rare conditions:  “Curve out your own community” 

Roselyn, together with a friend, co-founded Rare Disorders Kenya, an advocacy and support group for families navigating rare diseases.  

Initially created to mark Rare Disease Day observed globally every February 28 or 29 in leap years, Rare Disorders Kenya has since evolved into a powerful platform raising awareness, providing community, and pushing for policy change.  

“We wanted people to realise rare diseases are over 7,000, and the number is growing,” Roselyn says.  

The advocacy is paying off. The Kenyan government has now established a Rare Disease Working Group, a significant step toward systemic change. The WHA78 Resolution on Rare Diseases, May 2025, urged countries to embed rare diseases into national health plans, ensuring early detection through strategies like newborn screening, and guaranteeing equitable access to diagnosis, treatment, and assistive technologies under universal health coverage.  

One of the key issues Roselyn champions is access to genetic counselling and screening.  

“It’s important to understand what it means for future pregnancies,” she says. “Even if I don’t have other children, my firstborn might be a carrier. He needs to know when he gets a partner.”Roselyn dreams of a Kenya where rare diseases are no longer hidden in silence, but understood, supported, and embraced.  

“Because no family,” she says, “should have to walk this journey alone.” 

One in 100,000: Raising a baby with Joubert Syndrome 

Joubert syndrome — a rare genetic condition marked by the tell-tale ‘molar tooth sign’ on brain scans — disrupts coordination, balance, and milestones, yet remains little known and often misunderstood.

When Roselyn Kanja Odero first held her newborn son, Morgan, nothing seemed amiss. But as weeks turned into months, milestones slipped by. Morgan wasn’t holding his head up; he wasn’t sitting. “He started holding his head up around the fifth month,” Roselyn recalls. “And then started sitting at three years,” she adds.

A long and confusing medical journey followed — endless hospital visits, recurrent infections, and no clear answers until a brain MRI revealed Joubert syndrome, a rare neurological disorder that affects only 1 in 80,000–100,000 children worldwide. Often mistaken for cerebral palsy, it’s caused by mutations in more than 30 genes that disrupt brain development, particularly in the midbrain, which controls balance and coordination.

“Joubert’s syndrome is a condition that is caused by the fact that part of the brain is not formed,” explains Dr Catherine Mutinda, paediatrician and geneticist. “The genetic imprint or code responsible for that part being formed is either not there or it’s not working.”

For Roselyn, the diagnosis brought both answers and challenges. Therapy sessions cost up to Ksh3,000 each, with Morgan sometimes needing three per week. A specialised formula once cost Ksh3,000 per pack — one pack per week. At school, Morgan requires both mobility aids and a dedicated special-needs teacher.

Now eight, Morgan still trails his peers by about two years developmentally, but his emotional intelligence and spark often outshine expectations. Roselyn, co-founder of Rare Disorders Kenya, urges parents to trust their instincts: “As a mother, you are the primary caregiver, the primary doctor, the primary clinician. Trust that instinct.”